Emmalee's Well Child

One year ago TODAY Emmalee required an ultrasound to diagnose her with a severe intussusception that had to be corrected with surgery. Emmalee’s well child check today brought back the painful memories of that experience. A few red flags were raised today requiring another ultrasound, a full blood panel (and some other tests added on) as well as a referral to see a neurologist for some imaging of her brain. It appears as though Emmalee has “cerebral atrophy” and the cause is unknown at this time. She has also not gained weight or height in a few months and has fallen off her curve. She has considerably noticeable jaundice which is also unexplained. We have been referred to a speech therapist as well. Our sweet little precious baby girl has proven time and time again that she is a miracle. Our wonderful Rainbow Baby! We are so incredibly blessed.

Just spent a few hours at the hospital with Emmalee. They did an X-ray of her abdomen and checked her bowel and intestinal function. The X-ray showed A LOT OF POOP! And not just poop, severely dehydrated poop. She is full and unfortunately her intestines are not functioning properly or at a proper capacity to keep things hydrated and moving. She isn’t absorbing nutrients like she should. Despite our best efforts to keep her hydrated and fill her with nutrient rich foods. We are starting her on a medication to help “wake up her insides.” I will spare you all the dirty details but we will try this treatment for 2 weeks. At her follow up we will evaluate how the medication is working and go from there. Her neurology appointment is 2 weeks after her follow up. The gastroenterologist explained that children with neurological difficulties often have bowel issues as well. They could be related. We don’t have many answers and we will have to just wait and see if these treatments will help.

 

Emmalee is 18 months old

18 months!!!!! Emmalee is so incredibly precious and fills our hearts and home with the sweetest dose of wonderful we could have ever imagined. She is pure joy and sweetness in a giant puddle of cute! She makes us all better! We love her to the moon and back infinity! She loves to snuggle and is super giggly and playful. She fills our home with endless laughter and is a fierce lover of all things soft, snuggly and cozy! She is such a funny little creature and we love watching her grow. She makes this crazy world a better place and we are so blessed!

 

Girl's Day

 Yesterday: Thanks David for watching ALL the girls so I could have some Bestie-time out of the house w/Paige! Spent WAY too long at Joanne's (I don't get out much) and then had the most yummy lunch at PFChang's! Ordered the yummy chicken lettuce wraps & sushi roll w/virgin mojitos (w/coconut cream!) and didn't even get a picture of my amazing bread pudding dessert (so I borrowed one off the Internet),... without the rum-flambeau and switched to coconut ice cream for the win!! It was so nice to be OUT of the house AND to sit down in a restaurant to eat.

yesterday:

SNOW

 Snow!!!!! We got out for a bit to play! First wave complete. Onto the next wave which is expected to be a doozy bringing as much as 10 inches! We shall see!

We had such a fun night! Power went off around 1:30am and our security alarm was freaking out which woke up the entire house. We thought we got it figured out but it continued to go off. Patrick eventually just cut the wires. Caralynn ended up in our bed since she didn’t have a night light or noise machine, Emmalee got the battery powered noise machine and Anderson ended up on the couch with Wicket. We all finally fell asleep around 3:15 just in time for the power to come back on and wake us all up again. Brutal.

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