Emmalee had her appointment with the physiatrist up at the children’s hospital. He put in the orders for AFO’s (longer leg braces for support) and a wheelchair. It was a hard pill to swallow but we know this will open more doors for her and make life a bit more enjoyable and provide her more support than a stroller can. Her muscle weakness due to her Hypotonia and Myotonic Dystrophy is something that will be a challenge for her and unfortunately may or may not improve with time or therapy. We hope that these devices will allow our family to enjoy physical activities more easily and the ability to bring Emmalee along for the fun without exhausting her. Again, thanks for the love, kindness and support. Navigating this road has not been easy.
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