Tuesday, July 20, 2021
Monday, July 19, 2021
Preston is 5
Sunday, July 18, 2021
Saturday, July 17, 2021
A Wheelchair for Em
Emmalee had her appointment with the physiatrist up at the children’s hospital. He put in the orders for AFO’s (longer leg braces for support) and a wheelchair. It was a hard pill to swallow but we know this will open more doors for her and make life a bit more enjoyable and provide her more support than a stroller can. Her muscle weakness due to her Hypotonia and Myotonic Dystrophy is something that will be a challenge for her and unfortunately may or may not improve with time or therapy. We hope that these devices will allow our family to enjoy physical activities more easily and the ability to bring Emmalee along for the fun without exhausting her. Again, thanks for the love, kindness and support. Navigating this road has not been easy.
Thursday, July 15, 2021
Caralynn is 6
Happy Birthday to our Amazing and wonderful 6 year old! Caralynn, you are such a joy and add so much happiness to our life. You love life and everyone in it! We are so blessed to be the ones chosen to love you the most!!!
We had so much fun celebrating Caralynn today! Pet store, target to use her birthday money to get herself a new Barbie, ice cream cone, sharing cupcakes with her neighborhood friends, bike riding and playing in the green space with friends, spaghetti factory for dinner and ending the night with presents, hot tub and FaceTiming cousin Halle and laughing so hard she was crying. Thanks for all the messages, gifts, phone calls, texts and love for our crazy girl.



























































